PKU.com Community Discussion Forum New to PKU.com Father of a newborn with pku Reply To: Father of a newborn with pku

#5559
Avatar of fightpku
fightpku
Member

Hi Im a dad of a pku patient also but Im a filipino, we are told that phenyl free milk is not available here only in the US my child is only 21 days old we want to save her and give her the right to a normal life but the problem is the phenyl free milk, we dont have the capacity to order it abroad, we are devastated……

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional