PKU.com Community Discussion Forum New to PKU.com Father of a newborn with pku Reply To: Father of a newborn with pku

#5562
Avatar of Bethany
sjimnbeth
Member

Fight PKU
I’m sorry you can’t get the special phe free milk too. I was lucky that my son didn’t need it until he was 9 months old. It sounds like your daughter needs it now? If your baby is taking breastmilk, that’s the next best thing. It’s lower in phe than store bought formula. But at two weeks, if she’s not being breastfed, it would be hard to start back up.
good luck,
beth

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional