PKU.com Community Discussion Forum Parent support ill be all alone Reply To: ill be all alone

#5582
Avatar of Ellen
aka000103
Member

It will be fine. I have 1 year old twins with PKU. I stay home and thier father goes to work from 7 am until 8 pm. Granted he’s not out of the country, but I do it all. I even take them to the hospital that is 2 hours away every other month with 2 extra kids. I know it has to be the absolute scariest thing in the world, but I know you can do it. I look at video’s online that show adults with PKU that weren’t treated for it. It reminds me why it is so important to keep a “bible” of what they take in each day. It WILL be ok. I PROMISE!!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional