PKU.com Community Discussion Forum Parent support Late diagnosis Reply To: Late diagnosis

#5584
Avatar of Ellen
aka000103
Member

hello Michelle,
my twins are now 1. they were diagnosed when they were 3 days old. They don’t walk.. AT ALL… they only started crawling 1 week before thier 1st birthday. They don’t really say much, and thier levels have been perfectly fine this whole time. I have 5 children altogether, only the twins have PKU, each child has developed completely different. My middle developed much at the same pace as the twins and your child. Your child will be perfect and you’ll notice that your child will be smarter and faster in different areas.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional