PKU.com Community Discussion Forum What’s the Phe? Mom needs suport and answers Reply To: Mom needs suport and answers

#5616
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BreaMarie91
Member

Hi Gakette,
Do you know what type of PKU your son has (ie Classical or Hyperphe)? Because depending on which case he has he may still be responding normally because he is allow more Phe then others so he might be getting the right amount (I’m not sure what you all know about PKU).
I know that also the syptoms of untreated PKU sometimes take awhile to show up. So he might not show signs yet but if his PKU would have been caught you probably would have started seeing things. I know of a website that has lists of Clinics that treat people with metabolic disorders so I’ll figure out what the website is again and then I’ll post it here for you.
Breanna

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