Community Discussion Forum New to new member, PKU carrier. Reply To: new member, PKU carrier.

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Hi, I’m new here too. I have PKU and have a brother who has PKU. I’ve never heard of someone who is a carrier having to avoid artificial sweeteners and such. I have too because I have PKU. I have 2 sisters and a brother who are carriers and they basically eat whatever they want and drink whatever they want. As far as brain damage and such, this will happen to someone who has PKU who isn’t on a PHE restricted diet, as high levels of PHE will damage your brain if you aren’t on the diet. I really don’t think you have to worry. As for having a child with PKU, I wouldn’t worry too much. Of all the things your child could inherit from you and the father I’d say PKU is the least of your problems. GO FOR IT!!!

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