Community Discussion Forum New to new member, PKU carrier. Reply To: new member, PKU carrier.

Avatar of Keisha

Hi Lizzy nMy husband and i are both carriers of the pku gene, our 6 year old son has pku but we have never been told that we need a special diet ourselves. it is impossible to catch pku unless you were born with it. just wondering how you found out you are a carrier? are you related to someone with pku?
have you ever been on the pku diet? it just seems strange that you have been avoiding sweeteners and stuff who told you that you have to avoid these sweetrners?

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