Community Discussion Forum Adults and PKU Adult Late Diagnosed As A Child Reply To: Adult Late Diagnosed As A Child

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Hi pku1962,
I was also a late diagnosed pkukid. I was 8 years old and I have a younger brother who was 3 when he was diagnosed. He is severely mentally retarded. Miraculously I’m not- but just barely not. I didn’t have all the problems you have but I had some of the same ones. I’d love to chat with you sometime if you want. I think we’d have al;ot in common.

pkukid1 ( it’s pkukid1 because I’m the first and my brother is the second, if he had a online “name” it’d be pkukid2)

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