PKU.com Community Discussion Forum New to PKU.com teenage pku son Reply To: teenage pku son

#5762
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BreaMarie91
Member

Hi Nicole,
I guess the best way to understand how your son feels is probably to talk to him. Yeah, I know it’s easier said then done . If you want I would be more then happy to talk to you (and your son if he even wants). Do you guys have a good relationship between your PKU doctor/medical geneticist and your dietitian/nutritionist? I know that is one thing that helped me alot because when I got both a new geneticist and dietitian it was alot easier for me to talk about my PKU at appointments.
If you ever want to email me you can email me at complete@ameritech.net
Breanna n15 w/CPKU (16 in June!)

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