Hi! nMy name is Olivia and my little brother has PKU. When Max was born, my family had NOOO idea what the heck PKU was. My parents were confused and scared. I was only 9 1/2 and i also had no idea what was going on. Well, it’s 7 years later, and we have learned to watch what Max eats. He’s basically a Vegetarian. He can’t have any meat and only a few things with Phe in it. My suggestion is watch what she eats as she grows up. If you don’t already, you should get a book with a list of food items with it saying the amounts of Phe in the items. It would help ALOT!!! I don’t know if any of this helps you in any way…but just know that you are NOT alone.