Community Discussion Forum Parent support lots of questions Reply To: lots of questions


Hi! nMy name is Olivia and my little brother has PKU.
When Max was born, my family had NOOO idea what the heck PKU was. My parents were confused and scared. I was only 9 1/2 and i also had no idea what was going on.
Well, it’s 7 years later, and we have learned to watch what Max eats. He’s basically a Vegetarian. He can’t have any meat and only a few things with Phe in it.
My suggestion is watch what she eats as she grows up. If you don’t already, you should get a book with a list of food items with it saying the amounts of Phe in the items. It would help ALOT!!!
I don’t know if any of this helps you in any way…but just know that you are NOT alone.

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