Community Discussion Forum Parent support lots of questions Reply To: lots of questions

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HI Heather, I have a 2 1/2 year old son who has PKU. He has a mild case like your child. They call it hyperphenalalanemia or hyperphe for short. He was never on medical formula or special food as a baby and now as a toddler I just need to make sure he eats around 1500 mg of phe a day or about 30 grams of protein. I was nervous too when he was first born about what would happen to him developmentally or how the management would be but you just take it one day a time and it all works out. My son is a typical two year old and him having PKU no longer concerns me. If anything it has made me more aware of the special gift a child truly is!

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