Community Discussion Forum What’s the Phe? PKU AND ALTIMERS Reply To: PKU AND ALTIMERS

Avatar of BETHANN

hi my name is bethann m,oneill and my older brother is 52 years old and still going strong the only thing that has chang is he takes napes.
but of couse he live in a guss home and has a ruteen to fallow .and my other brother is a trucker and he is 46.years old and me iam 47 year old
we all have classic P K U and we are the oldest that DR R.KOCH .has in his grop in L.A. CAL. so i don’t know yet nif it will get to that point but it’s posible it could happen njust depens on the presonand there if i find out ni will tell all about it ok

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional