PKU.com Community Discussion Forum Generation PKU Blood tests gone missing, and food never comes. Reply To: Blood tests gone missing, and food never comes.

#5817
Avatar of Maddy
GotPKU
Member

hah, oh my gosh, i freek out about it about it atleast once a month!!! the foods are SOOOOOO expensive, but i have GOOD medical ensurance so we dont have to pay for it. nFOR: n1 low pro box of flour, it costs $9.33 n1 box of low pro cookies, $12.77 n1 box of spagetti- $23.50
now that iv;e been on this diet for 15 years, it is just really normal, and i have trouble thinking of any other way to manage my life. To me, not eating amino acids every mealtime, seems really really weird!!! too easy. BUT it is extreamly emotionally painful!!!

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