PKU.com Community Discussion Forum Parent support Need of funding Reply To: Need of funding

#5855
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Momofadyangel
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Thank-you for responding HappyMom and for providing the information. Addy is a patient of Dr. Susan Root. The hospital has been great working with us to get the formula where we can afford it. Its been a fight with Great-West. They are now working with us after mentaining they were violating state laws concerning PKU.
In hours spent on the internet researching PKU and trying to find funding, I found a site http://www.smileinworks.com for PKU funding. Do not know if it is worth it. I still not receive the information requested. MomofAddyangel

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