PKU.com Community Discussion Forum Generation PKU How the exchanges work Reply To: How the exchanges work

#5898
Avatar of Breanna
BreaMarie91
Member

I know that I’m (and my little sister) supposed to have 300mg of phe a day (or 20exchanges/about 6.5g protein I think). We go to visit my medical geneticist (my doctor), genetic counselour and my dietitian either every six months or every year. They tell us the recommended amount of phe we should be taking based on our blood levels. nBreanna n16 w/CPKU

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