Believe me I know the burdens of the cost of the formula and food. But from what it sounds like that isnt the primaryreason many people are off the diet. I know that Gutherie discovered the “secrets of PKU” if you will in the late 60s or 70s. My question I would think is more towards kids my age and young adults that doctors knew more about.Many people I know just dont like the diet so they say “forget it” in a sense. My sister (non-pku) went to Australia for a semester about 4 years ago and she went to a walkathon for PKU and they were selling ham sandwiches to people with PKU. I dont know I guess it’s more that kind of stuff I don’t understand.