Community Discussion Forum Parent support moderate pku Reply To: moderate pku

Avatar of Breanna

Sarah, nDo you mean what is Hyperphe? Hyperphe is pretty much just a mild case of PKU. I think they base weither you have hyperphe or classical PKU off of how high blood levels are when they do the newborn screening (but I’m not positive). Hyperphe and Classical PKU are basically the same thing except people with Hyperphe are generally allowed more phe. So some people with Hyperphe are allowed so much phe that they really don’t count what they eat which I think might be why Speedinsdy’s doctors told her daughter not to go on a diet. If they think her daughter has a really high phe tolerance then they might not need her to be on the diet…but if she’s got these problems then she might not have as high of a tolerance that her doctors think. nBreanna

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