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Hi, nThe first thing I think you need to do is get in contact with your baby’s doctor and you need to find some sort of specialist for PKU to help you. If you let me know what state you live in I might beable to help you locate a clinic that deals with PKU.
If she has tested positive for PKU 3 times, I would say your baby does have PKU and you would need to get her a special metabolic formula. She will need to be on a special diet with excludes meat, diary, most grain, beans, nuts and mainly foods high in protein. She will need to be on a low protein diet from now on for the rest of her life. Regular blood tests will need to be taken to monitor how much Phenylalanine is in her blood aswell.
I’m here to answer any questions you have. nBreanna n16 w/CPKU

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