PKU.com Community Discussion Forum New to PKU.com high levels Reply To: high levels

#6113
Avatar of charlotte
charlottek
Member

hi have spoken to megan and she would like to talk to you and your sister if you don’t mind in doing so, we don’t know anyone else with the condition so it would be nice to talk to someone who knows first hand about pku, she also has, like yourself an extreme phobia of needles and she has to start doing her own bloods in the next few weeks so i think talking to you will help if you could let us know your e mail address thanks

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional