Community Discussion Forum Adults and PKU Pku moms Reply To: Pku moms

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levels were 258, not too bad considering i have eaten everything i want for the last 34 years!! I am keeping a food diary at the minute and seeing a dietician on Monday to see how i can change my diet, i didn’t realise how bad my diet was until i started keeping it!!!! It is actually embarassing! The canteen in my work don’t really cater for healthy eating…..and i work in a hospital!!! The “misdiagnosis wish” was clutching at straws i think, hoping i didn’t have to give up my T-bone steaks! Will know more by Monday. What would really high levels be? My consultant said i need to take them down below 250 for pregnancy. I really know nothing about PKU. I have had blood sent for DNA testing, and also sent some on my husband. Will get my levels checked again on Monday. K x

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