Community Discussion Forum Adults and PKU 46 and CPKU Reply To: 46 and CPKU

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I am 49 years old and have had pku my whole life. I was dx at birth. I don’t understand how someone could miss your diagnosises at such a late age. I have not physical, mental, or emotional problems from pku. I was taken off my diet at age 5 and have been off it my whole life. I was born at a time when doctors said that it was safe to take children off at that age. I have been puzzled how pku has effected people and not sure why. Anyway I just wanted to add my thoughts and hope all goes well with you.
Lucy Day

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