Community Discussion Forum New to NEW TO PKU Reply To: NEW TO PKU

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Can I ask you a personal question? I read in your profile that you have 2 sons. Were you on a special diet for your pregnancies?
My children’s geneticist is constantly discussing my daughter’s possible future pregnancies as being very high risk for resulting in mentally handicapped children. My baby is only 2 so it’s hard to even imagine that yet. I’m hoping they’ll invent a small white pill that will alleviate any potential harm her elevated phe levels will have on her own babies.
I have met 2 CPKU moms who maintained their diets and had “typical-developing” children. With hyperphe some of those strict diet lines are very blurred.
Thanks, nDonna

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