Community Discussion Forum New to NEW TO PKU Reply To: NEW TO PKU

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Thank you for the support and input. My son is now 2 months old and has been on the phenex formula for 2 out of his 6 bottles a day. his latest bllod work hi sPHE levels were 3.7. Now its just monthly blood work and monitoring when foods are introduced. Our genetisist told us about a pill that may be coming out for hyper-phe Anyone else hear of this?Dawn

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