Community Discussion Forum New to NEW TO PKU Reply To: NEW TO PKU

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What I really wanted to say is that your daughter will beable to have perfectly fine children if she follows her diet while she’s pregnant. BUT, I know you directed that question to Deb and she has done it before so I’ll leave her to fill you in on more details. I’m just telling you what my Medical geneticist, dietitian and genetic counselor have told me my whole life and what I’ve heard for women with PKU who have had kids. nBreanna
Apparently the medical advice regarding gestation and maternal hyper-phe varies from geneticist to geneticist. The center we work with appears to be quite cautious and somewhat alarmist in nature. My older brother (CPKU) has also asked advice on maternal hyper-phe from his geneticist in New York and the advice was much more alarming than comforting. I’m glad to see your geneticist and dietician are much more optimistic.

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