Community Discussion Forum New to NEW TO PKU Reply To: NEW TO PKU

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Breanna- nYou are so knowledgable and sound so well adjusted. Great job to you and your parents. My son is only 10 weeks old he is on the unflavored phenex formula 2 out of 6 bottles a day. We would probably try the pill if it was made available being is has mikd hyperphe and hasnt started any sort of diet, if he even needs it once he strtas real food. I still get alot of anxiety when i think about it. I try to tell myslef to take one day at a time and who knows what will be when he does start eating solids. He may not even need a restricted diet. Only time will tell and hopefully his PHE levelds will remain WNL.

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