Community Discussion Forum Adults and PKU 46 and CPKU Reply To: 46 and CPKU

Avatar of Deborah

Hi, I am new to the group also, I have PKU (hyperphe). I was only on diet a few times in my life, when I was very small, than I was taken off, and put myself back on when I went to camps for PKU. I did pretty well, I was very carefull when I had my children, now 5 yrs later, I am going back on.
I am worried what will happen as I get older without being on diet. Plus I am not feeling great. Would love to hear from anybody who has suggestion on how to handle this with working full-time, and having 2 very active young boys
Thanks in advance

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional