Community Discussion Forum Adults and PKU PKU Adults Reply To: PKU Adults

Avatar of Nick

There are a couple places you can monitor for news. is one, as is and this board: As to a cure…it is possible that eventually a cure will be found, most likely using gene therapy. However, that’s decades away, at least, and at 34, I don’t expect to be too likely to benefit. However, there is research going on all the time to find better ways to manage PKU, such as BioMarin’s work on Kuvan (, treatment with LNAAs (, as well as work with fusion proteins ( and a number of other areas.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional