PKU.com Community Discussion Forum New to PKU.com MIld Hyperphe Reply To: MIld Hyperphe

#6211
Avatar of cindy
gmafirst
Member

Hi I just read your question and don’t worry things are going to be ok. MY grandson was diagnosed with classical pku and we did the same thing had the same questions and worries. As your baby gets older and starts eating baby food, the nutritionist will help you figure out his food. With Chance (my grandson) we will do his blood level and his nutrionist will call and refigure his solid amounts and phenex amounts and we go from there. Our biggest scare was figuring out the phes. but we did it and now its second nature.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional