PKU.com Community Discussion Forum What’s the Phe? PHE block pill Reply To: PHE block pill

#6227
Avatar of Breanna
BreaMarie91
Member

Andolyn,
I was just wondering, has the pill been working for you? Also when you first started taking it did your doctor need to take your blood alot? The reason I’m asking is because (even though I said I wouldn’t do this) I have been asked to join a study with the pill Kuvan and I really don’t know if I want to do it. Part of me does because I’m curious and for various other reasons, but then part of me doesn’t because I’m afraid to and I don’t want to experiment with myself. But the main reason is because I don’t do good with needles AT ALL and if I join the study it would mean more blood tests. nBreanna 16 CPKU

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