PKU.com Community Discussion Forum New to PKU.com MIld Hyperphe Reply To: MIld Hyperphe

#6273
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opal33569
Member

Hello, I just found this site and so far it has helped me understand a little about this condition. My cousin just found out he was the dad of his 11 month old son and he just recieved custody. we are still trying to find all the info we can about this condition. I have to make an appoint with his specialist but they will not be in the office untill tuesday. The case workers on his case have not really anwsered any questions about this condition. He is currently on phenex-1. I was reading a few blogs and was wondering how many bottles a day dose he need? Or what kind of food can i give him? i don’t know his levels yet but i do not want to give him the wrong thing. so if anyone could help give me a little insite untill i see the specialist i would greatly appreciate it thank you….

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