PKU.com Community Discussion Forum New to PKU.com MIld Hyperphe Reply To: MIld Hyperphe

#6274
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BreaMarie91
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How much of his formula he needs depends on him personally. For example I’m supposed to take enough formula so that it equals 45grams of protein, but my sister is only required to take 40 grams. It should say on the can of his formula how much each tablespoon etc is equal to home much protein equivlants (I hope I’m making some sense).
Until you see his specialist I would probably suggest feeding him mainly fruits and veggies. But watch out because things like peas, corn, squash, pumpkin are all very high in Phenylalanine (that is what he has to limit in his diet) so those are all probably no food. The same with bananas. I’m not sure how much you know, so I’m just trying to explain as simply as I can. Applesause, Hunts lemon or lemon mirangue pudding, fruit snacks (like fruit roll ups) are free. Most candies like laffy taffy, skittles, starbursts and hard candies are free so long as they aren’t sugar free, don’t contain asparteme, nuts or chocolate.
When you go in for his first appointment be sure to ask any questions you have! Don’t be shy about it because you getting the knowledge you need is so very important. I’m 16 and have PKU so I’ve been living with PKU for 16 years and I still find that I have questions for my doctor or dietitian sometimes.
When you go see if you could get things like email addresses and phone numbers etc from your specialist and dietitian. That way if you ever have a question you can get an answer.
If you ever have questions for anybody on this board feel free to ask! I know for sure that I’ll try to answer your questions if I can! nBreanna 16 CPKU

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