Community Discussion Forum That’s PKU life! i hate being pku Reply To: i hate being pku

Avatar of Breanna

Smart thinking Millie! That reminds me of what my old doctor used to tell me: “It doesn’t matter what food tastes like because it’s only going to go down once. Just be glad it doesn’t come back up.” nWhen I was little I found that funny, but now it’s a tiny bit gross when you think about it Lol!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional