Community Discussion Forum New to Teens with PKU Reply To: Teens with PKU

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well im 21 with pku and im goign to begin studying to be a metabloic consellor .. i hope to open a non profit supprt center for ppl with metabloic and gentic disorders. i am trying to get a local commmitee toghter to organize a PKU walk a thon but am having troulbe finding local ppl with PKU… i can find ppl from all over the world but not vancover island or home town of victoria. I would really love some help in organizing some fundraisers for PKU foods and research, i also sell PKU blue wrist bands and have created a PKU website. ni would love to talk to anyone who has oranized pku related events or are jsut trying to spread the word and creat awarness..

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