Community Discussion Forum New to What do you think about PKU Reply To: What do you think about PKU

Avatar of Breanna

I’m just going to rattle off a bunch of random websites, if you haven’t been to them then check them out. They’re all pretty much PKU sites:
These ones don’t have message boards (as far as I know) but they are also helpful sites:
And finally there is the listserv where you can signup and then through emails you can post questions and stuff and it will get sent out to all of the people on the mailing list. If you haven’t heard of it before and don’t know how it works you kind of have to read through the things on the site to understand it. I’ll leave you with the website to sign up for the listserv but let me warn you, if you join your mail inbox will fill up quicker then normal .
Lol, don’t ask how the heck I know all of these websites…I just do. nBre

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional