PKU.com Community Discussion Forum Parent support New to Florida. Reply To: New to Florida.

#6533
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KristiKon
Member

We see Dr. McReynolds at Nemours in Orlando. He’s great, but he cut his hours down b/c he’s working on retiring. I love the dietician there also (Sandy). What I’ve been having trouble with is the nurse that takes Hailey’s blood (you can read all about it on a thread I started titled blood tests (under “new to PKU”). I’m going to talk to them next time about letting us do the tests at home or at least letting our pediatrician do it. It’s quite a hike to Orlando, plus all the other stress that I wrote about in the blood test forum. Anyway, the only other people that I know of with PKU are from this site…in other words, I haven’t found anybody local yet, except for you. I think it’s a great idea to start a support group though so let me know if you need any help! n–Kristi

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