PKU.com Community Discussion Forum Parent support New to Florida. Reply To: New to Florida.

#6537
Avatar of Breanna
BreaMarie91
Member

Sorry guys, I don’t mean to invade the parents section (again…I seem to do this alot). I just thought I would point out that there is a website called http://www.PKUworldlink.org that has a listing of people with PKU throughout the world. Obviously it isn’t everybody with PKU, but I believe there are 15 listened there in Florida (ranging from parents listing their infants to PKU adults). nThere aren’t any PKU support groups through your PKU clinics in Florida? nBre

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional