Community Discussion Forum New to Blood tests Reply To: Blood tests

Avatar of Kristi

Okay, so here’s my update: We talked to the doc today and he reluctantly agreed to let us do the tests at home. He said they aren’t quite as accurate and that it’s tricky b/c you have to make sure the blood drops are on the circles perfectly so they spread evenly, etc. (I think kind of trying to talk us out of it), but if so many people out there are doing it, it can’t be that tricky. We have to go back next month and then after that I think they will let us do it from home…hooray!! I also had my first lesson in counting Phe, planning the daily menu and all that fun stuff. Now I just have to teach everything to my husband

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional