Community Discussion Forum New to Niece was just diagnosed at 4 days old Reply To: Niece was just diagnosed at 4 days old

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I think they have been working on a blood test kit that is similar to a dietbetics blood meter. I think they’ve actually been working on it for a long while. The problem is it would most likely be very expensive, that and we have no idea if this would be avaible in 5 years, 10, 15 or what.
I am sure that Reece’s levels will be fine. That usually happens when kids go through growth spurts, their levels go down. It’s because they’re growing so they usually need more phe. I guess a plus is that your doctor might just very well tell you he is allowed more phe. Who knows. But it will work out in the end! nBre 16 CPKU

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