PKU.com Community Discussion Forum New to PKU.com NEED SOME HELP WITH UNDERSTANDING Reply To: NEED SOME HELP WITH UNDERSTANDING

#6662
Avatar of Marie
jammnm
Member

I can completely understand your friends feelings with the PKU diagnosis. After my son was diagnosed I had a lot of emotional days. He is 7 months old now and his PKU has become a way of life for us. There are definitely inconveniences with it but the most impotant thing to rmember is that PKU is treatable with a special diet. People are always amazed that my son has anything wrong with him because he is such a happy baby and he looks completely normal. A good website to look at is the childrens PKU network (www.pkunetwork.org) they have a packet of information that they will send to new parents. Another good site is http://www.pkunews.org I hope this information helps your friend. nMarie

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional