PKU.com Community Discussion Forum New to PKU.com New to PKU and just want to say Hi Reply To: New to PKU and just want to say Hi

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Anonymous

lydia. welcome to the PKU world and congrats in ur baby girl!! i just wanted to say hi and introduce myslef. my name is Amanda im 21 and live in victoria BC i have CPKU which means classical. im sorat a pku arwarness avocate. im creating the very first canadain walk a thon , i have a PKU website and i sell PKU t-thirts and writsbands. i wanted to give u the link to my website as i think you would find it useful as it has my personal story about growing up with pku and a jornal recpies etc ect aslo my mom has posted her story about everything that she went though as a young new mom to me. i think you would benifit from hearing her story or even talking to her. also i would love to talk with u further if u wanted to.
the website is http://pku.bravehost.com/ hope to see u there!

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