I am a 45 yr old woman late-diagnosed PKU. I have 4 children adversely affected by my PKU. They have multiple developmental disabilities, including mild-moderate-severe mental retardation. I was not diagnosed with PKU until I was 4 1/2 yrs old- at which time I was hospitalized in the Los Angeles Children’s Hospital in West Hollywood, California. I was put on the restrictive diet at that time. I was only on-diet for a year before they took me off again. They told my parents they didn’t understand why I was’nt severely mentally retarded, but they predicted I would be by grade-school. They advised my parents to have me “sterilized” and institutionalized. Fortunately for me, they didn’t take that advice. Well, that’s all for now.