PKU.com Community Discussion Forum Parent support New to Florida. Reply To: New to Florida.

#6746

Hi,
Our dietician in Tampa came across your post. We live in Bradenton, our son has pku and my husband is currently the director of USMD in Florida. It is part of Unified to Support Metabolic Disorders. The group is in it’s infancy in Florida, but we held a golf outing in May 2007 for pku research and raised $16500. We also had a statewide social and info meeting in November at the zoo in Tampa, which was attended by aprox 30 PKU families (130 people) from all over Fl. After the new year we hope to have a membership drive, get more people involved and establish a more formal organization, with officers, committees etc. Please let us know if you would be interested in getting involved. Florida is a big state and we forsee needing “regional” committees. Our golf outing is May 17th in Bradenton this year. nCindy

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