Community Discussion Forum That’s PKU life! Teens with PKU Reply To: Teens with PKU

Avatar of Meaghan

I had a horrible time with my medicine from the time I was 6 till the time I left for college. My levels would rarely be under 10 when they wanted them to be at 3. For me, it was because I didn’t understand why I couldn’t have everything else. Or people were making fun of me for not eating cake and cookies so I would. I would say first see if there are any other types of medicines your child would like, I am on 3 different types and I get to mix and match each day as long as I get the equivalence I was told to. Second, ask if anyone is given them a hard time about having PKU, sometimes that can really affect what your child eats. And finally, WITHOUT lecturing, make sure your daughter knows how important it is to take her medicine everyday. Hope all goes well Meaghan 19 in college w/ CPKU

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