Community Discussion Forum That’s PKU life! How do you keep your level down? Reply To: How do you keep your level down?

Avatar of Meaghan

Hey Millie, I am 19 also with CPKU but I am only allowed 225mg a day, which is basically the equivalence of 5 grams of protein. It all has to do with moderation of “regular foods”, knowing the amount of protein in the foods you like, and eating lowpotein foods whether you like it or not. Skipping meals is also horrible in the long run because your body breaks down your muscle eventually, and muscle is…drumroll please… protein. I believe that if you stop thinking it is difficult and stop thinking you can’t make your count it will be helpful as well. So far I’m doing great on 225 so best of luck to you and I hope you can keep your levels down the healthy way! Meaghan 19 in college w/CPKU

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional