PKU.com Community Discussion Forum Parent support New to Florida. Reply To: New to Florida.

#6828
Avatar of Amy
SammysMom
Member

We went to the PKU day at the zoo… we enjoyed it very much. My daughter is only two, so to be in a room full of people with PKU is extremely surreal, to say the least. We traveled all the way from Pensacola which is up on the panhandle, right under Alabama. It took us 8 hours to get there, but I felt like it was worth it. We only have 4 PKU children in our entire area that I have met. Two of them live half an hour to an hour away from us, so I know what it’s like to feel like your stuck out there alone. I have found the internet to be a great resource to keep in touch with other PKU people. (Can you imagine how people with PKU felt BEFORE the internet?! *L*)

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional