PKU.com Community Discussion Forum New to PKU.com Highly variable phe levels Reply To: Highly variable phe levels

#6880
Avatar of Breanna
BreaMarie91
Member

Lol, thanks Amanda . Unfortentually, I’m not sure if I can offer much help. When I was born my level was in the 20’s, so I was put on the diet right away. Since she is getting older is she eatting more? I’m just asking because maybe if she is going from eating a limited amount of baby food to a lot of ‘big kid’ foods (like bread, pasta etc) that has a lot of phe in it.
Maybe she does have a limit to how much phe she is allowed to have. If her phe allowance is high enough then of course the diet isn’t needed, but I guess it would be needed if she is starting to eat more high phe foods. Does she eat things like meat or dairy products? I know those are crazy high in protein! nGood luck with your granddaughter! Ask any questions you have, there are soooooo many helpful people here! nBreanna 16 CPKU

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional