hi amy, im Amanda i am 21 and i have pku , id love to tell u all about pku and waht it has been likeing growing up with it, but its to much to type out here , so im gonna give u my link. i have a pku website were i posted my story and and any info u can find on pku, it has a guest book , message forum, live chat, my own journal and lots lots more. i think u would find it very usefull. here is the link just copy and paste it in ur search engine. http://pku.bravehost.com let me know if u have any questions and i will be happy to help u in any way!!