PKU.com Community Discussion Forum Parent support Levels out of range Reply To: Levels out of range

#6932
Avatar of Amy
SammysMom
Member

I’m starting to see this as a trend, although no doctors will tell me it is. My daughter is 2 years old and her levels have always been up and down and up and down. For a while, her levels were in the 0 range, 0.7 0.2 0.8 … all of a sudden she’d spike up to 8.2 within a week. We are still taking weekly levels and it’s just something you have to watch, make sure she has all her phe and keep taking the levels. Patience is key. We understand how u feel.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional