PKU.com Community Discussion Forum Parent support Levels out of range Reply To: Levels out of range

#6948
Avatar of Susan
Lydi_mom
Member

Hi,
It’s good to know that Lydia is not the only one this is happening to. It’s just very frustrating. She still has not had a reading within range, but after being so low, she shot up to 13.2 and then after 2 days of adjusted diet to bring down her level it was below 1! Then after giving her more milk to increase her level it’s still below 1, so we’re trying more milk. Maybe it is growth spurts I don’t know for sure and she’s my 1st with pku so it’s all new to me. But I guess all I can do is to follow the dietician’s orders and watch her grow. She’s sitting unsupported already!! nThanks everyone for your comments. nSusan

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