PKU.com Community Discussion Forum New to PKU.com Any PKU experts out there? Reply To: Any PKU experts out there?

#6969
Avatar of
Anonymous

i was told that is absorbed, and i asked my detican what happens when some has constant high phe levels just it just keep building up..she said its like being high or drunk and its called being toxified, the feelings eventually go down and it breaks up but it leaves behind damage over time, sorry if this makes no sense my wrists are killing me…but hey good question hope i helped a little!

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional